In 2008, Simon Fitzmaurice was diagnosed with Motor Neurone Disease (mnd). He was given four years to live.
In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.
Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.
Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.
If you are hungry for truth and beauty, read this book, Roisin Ingle, The Irish Times
Sparsely and beautifully written...the human spirit and will to live shines out of these pages...By the time you reach the end of this book, with tears of admiration, sadness and frustration in your eyes, the question is no longer why would you want to live...but how could you not, Irish Independent
[A] gripping, affecting, sometimes funny read by a natural-born storyteller with something to say about the weight and the value of a life...If you need a story of courage, of heart, of coming back for more, of love and struggle and the power of both, It's Not Yet Dark could be the elusive thing you're after', Joseph O'Connor
Beautifully written...utterly life-affirming, Alan Rickman
Crystal clear, radiating all the things that we aspire toward. A beautiful love story, Colin Farrell
Part memoir, part stark document of the way [Simon] and his family have dealt with motor neuron disease, and part fierce celebration of being alive, It's Not Yet Dark is powerful, gripping and compelling, Irish Times
[ It's Not Yet Dark is] a demonstration of a will to live that is breathtaking...There's a rhythm of immediacy that feels like a still-beating heart whose strength is beyond admirable. It is a work of documentary poetry...an extraordinary read, The Herald
About the Author
Simon Fitzmaurice is an award-winning writer-director. His films have screened at film festivals all over the world and won prizes at home and abroad. He writes regularly for The Irish Times. His short fiction has been shortlisted for the Hennessy Literary Award and his poetry has appeared in the quarterly publication West 47. Simon is currently working on his first feature-length film My Name is Emily. He lives in Greystones, Co. Wicklow, with his wife Ruth and their five children